Showing posts with label News. Show all posts
Showing posts with label News. Show all posts

Wednesday, June 19, 2013

It's Been A Long Time Since (You've) Seen (My) Face...

When I was thinking of a title for this post, I couldn't get this song out of my head:


I know it's been entirely too long since I've written, and all I can say in my defense is that I've been incredibly, incredibly busy and a lot of things have been going on in our lives.

First off, my husband got back around a month ago from working out of state and got to be home for three weeks, but then his brother's wife had their baby so he went back to run his crew while he took some time off. That was a little over two weeks ago, and even though I'm used to him being gone, it still isn't fun to see him go.

It usually isn't too bad once Baby Girl and I settle into our routine, but this time has been a little different. Instead of our usual staying at home during the day schedule, the first few days of last week I was a group leader at our church's VBS. I also had to fix a stopped up drain in the bathtub by myself, and have been washing curtains, miniblinds, and moving furniture and boxes (by myself) for the past two days in anticipation of our new windows that are being installed tomorrow. I was informed of this appointment on Saturday evening, and my husband isn't getting home until late, late tonight. All of that on top of trying to keep up with our little one, the house, and my work stuff hasn't been easy.

Besides the chaos, I've been in and out of doctors appointments trying to figure out what's going on with me lately. I've mentioned my anxiety issues before (which started with my Chiari flare-up around a year ago)...simply put, it's hard to tell when the physical feelings I'm experiencing are due to my diabetes (low blood sugar), the Chiari stuff, or anxiety. Some of the symptoms overlap, so it's basically a process of elimination. Add to that the fact that my husband has been gone for the better part of six months, and my anxiety quickly got out of hand. One ER visit, a Holter monitor test, and an echocardiogram later, the doctors haven't found any physical cause of my heart racing and palpitations. Everything has come back normal, so at this point we can safely attribute it all to anxiety...upwards of $2,500 in testing/visits later.

It's all been frustrating to say the least, and all I want is to feel better...normal. I've literally reached the point of being "sick and tired of being sick and tired." It seems like if it isn't one thing, it's another. My awesome doctor has been working diligently to balance my medications in order to gain control of my anxiety, so that's been a huge help. Since I was having actual panic attacks, I was taking a very small dose of Xanax whenever they would occur until the Celexa started to kick in. Since that failed to effectively manage my anxiety level, she upped the dose on my Celexa and prescribed me Buspar to replace the Xanax (not on an as-needed basis, of course, but as an additional means of eliminating the anxiety). With the addition of the Buspar, my anxiety has all but disappeared.  So basically, I'm taking a lot more medication than I'd like to be on, but I'm finally starting to feel human again.

Ideally, I would like to be medication-free, but obviously that isn't an option for someone that needs artificial insulin to survive. I'd at least like to get rid of my muscle relaxers for the Chiari and my anxiety medication, though. I discussed it all with my doctor keeping the future in mind, because I didn't want to be on something that would either be extremely hard to come off of or dangerous during pregnancy/breastfeeding later on. I'm by no means ready (physically or mentally) for another baby, but clearly I have to plan waaay in advance for those things!

Diabetes-wise, it's pretty much hit or miss it seems. I have some days or weeks that are really good, and some that I'd rather not think about. Highs frustrate me, but lows scare me. I've been very successful at avoiding the lows, but I still see more highs than I'd prefer to have. My next endo appointment is next month, so I'm interested to see how my A1c is. If I had to guess, I'd say it's probably going to be about the same as last time. I'm just hoping it's not worse. It's hard to explain to someone who doesn't have to monitor something that their body does naturally, but it's unbelievably frustrating to try so hard and want so badly to have normal numbers and not get them. I'm also pretty self-sufficient when it comes to my diabetes management, but I think if my numbers aren't where I like them this go-around I'm going to enlist some professional help to see what I'm doing wrong. I think sometimes I just get in a rut and either miss things I could be doing; or the opposite, I start doing too much and screw everything up.  I know a lot of it can probably be attributed to the stress I've been dealing with, but that doesn't make it any easier to accept. If anything, that lack of control just adds to the stress.

More than anything, it all makes me want a cure that much more. At our last JDRF board meeting, we were shown this video: http://www.youtube.com/watch?v=QNYI3ofxbJ8 (for some reason, I couldn't find it on Blogger to embed, so you'll have to follow the link to watch it). It's so amazing to think that in the semi-near future, people with T1D will have the ability to wear a machine (insulin and glucagon pump + continuous glucose monitor) that automatically regulates their blood sugar. Obviously it's not a full-blown cure, but it is a dramatic, exciting leap in diabetes technology. In addition, there is also current research that is focusing on encapsulating functioning islet cells for implantation to replace the body's own nonfunctioning cells, which would be very close to a literal cure in my way of thinking. Either way, my biggest hope is that I'll be able to utilize these technologies in the near future to achieve a better level of control over this disease.

With that said, I better go put our puppy up for the night and get ready for bed! My husband just made it into town, so I think I'll spend some time with him rather than my usual Facebook =)

Friday, January 11, 2013

Happy New Year! (2012 Summary; The APP & SDP)

It's a new year again, and what a big year 2012 was for us! I could go into more detail, but I think it can all be summed up in one simple sentence: We became parents! Everyone talks about how parenthood changes your life, but you truly don't understand it completely until you're a parent yourself...even when you're pregnant you can't fully comprehend what it's like to go night after night (after night, after night) without good (or even decent) sleep, or on the flip side, the amazing, indescribable joy that comes from the simplest things, like when your baby smiles or laughs.

It was also a year filled with new challenges in regards to my diabetes management routine. In the two and a half years since I was diagnosed, I don't think I've ever had such a hard time controlling my blood sugars-- aside from the first couple of weeks that I was pregnant. The biggest change for me has been a new-found fear of lows...even when I was pregnant, lows weren't really that big of a deal. If I were given the choice, I'd have picked a low over a high any day. Now that there's a little person whose safety is very literally completely dependent on my being able to take care of her, though, I have a very different view of things. I was extremely cautious about lows shortly after our baby was born, but it wasn't until my first experience with glucagon and what turned out to be a Chiari-related scare in Target that I became terrified of them.

My biggest fear is that I'll be giving my baby girl a bath or driving down the road with her and have a debilitating low. Either of those cases would be horrible, and they're not something I like to think about...but I have to. I have to because I have to think about them in order to prevent them. I don't get my sweet baby ready for her bath until I check my blood sugar, and I'm very careful while driving too. For the most part, I haven't had very many bad lows because I've been intentionally running slightly higher than I'm used to to avoid them.

As a result of that, though, I've had way more highs than I'm used to, and I hate it. I hate it because I'm a perfectionist to the core and want my numbers to be normal(ish). I told my husband we'd wait until our little one was at least a year old before thinking about another baby, but at this point I'm not comfortable enough with my ability to control my blood sugars like I did during my first pregnancy to take that step yet. I want to give our next baby the same chance at a good, healthy life as I did with our first, end of story. I don't know when I'll be ready, but I do know that it won't be until I get a better handle on things d-wise.

I've made a lot of changes to my insulin routine over the past few months in an effort to gain better control, but it's been hit or miss. What works one week (or day) may not the next, and any change in my routine causes a major overhaul to my insulin needs as well. I started exercising consistently a couple of months ago, but the week before Christmas our baby girl had an ear infection and I couldn't work out. Then there were the Christmas holidays, and since my husband was home (he's been working a few states away), I wanted to spend as much time possible as a family. Since then, I just haven't taken the time to exercise. I need to get started again because I KNOW I feel better when I'm consistently working out, but it's so hard to get back into the habit! I can also tell a big difference in my blood sugars then, although it makes preventing lows a little more complicated =)

Last year there were a lot of successes in the diabetes technology world too. The Artificial Pancreas Project is making good progress, and looks like a very promising treatment method for T1D. I know it's still going to be a while before it's available to the general public, but it's hard not to get excited about it! Here's what I posted on my Facebook page about the APP:
It's not a cure, but it will make our lives better and easier...a little more normal. Normalcy is something you take for granted until it's gone.
THIS is what we're all working for. As Jeffrey Brewer (JDRF President and CEO) says, "Less until none." Less needles, less complications, less highs and lows. Those are the things that T1D steals from us. You often hear about the time diabetes takes from your life, but most of the time it's discussed in terms of the years lost at the end. The reality of living with this disease means that you lose seconds, minutes, and hours; everyday moments (like sleep, when you're waiting for your blood sugar to stabilize before bed) and priceless ones that you can't get back. I don't even want to think about all the precious time I've missed with my daughter, being forced to tell her to "wait just a little bit" while I check my blood sugar, fix my basal rate, or change my pump site. It's so, so hard to put the needs of my diabetes before hers, but in the end I know it's what I have to do...the whole "put your oxygen mask on before assisting others" thing. Not doing it isn't an option, because I refuse to let diabetes steal anything else from my life or hers.

I think a lot about what my life would be like without T1D. Of course I know what it was like before (I was only diagnosed a little over two years ago), but I'm talking about now. Now that I have a daughter who needs me, and whom I love more than anything else in the world. It would be so awesome to not have to calculate carbs, or think about how everything else (sleep--or lack thereof, exercise, illness) will affect my blood sugar. It's a constant balancing act, and it always seems to tip to one side or the other. I would love to be able to have normal blood sugars again without thinking about it all. It's the "what if" that a lot of people with T1D don't like to fantasize about, because they don't want to get their hopes up that a cure will be found in their lifetime. I, however, have faith that even if a true cure is a long way off, new research developments will at least make our lives better. And as Chuck Eichten says in his book "The Book of Better: Life With Diabetes Can't Be Perfect. Make It Better", any amount of better is better. Perfection isn't attainable (although that's something I've yet to take to heart!), but better is. The Artificial Panreas Project isn't a cure, but it will mean a better life for those of us with T1D.

On a similar note, Congress recently renewed the SDP (Special Diabetes Project), which means that millions in essential funding will be available for diabetes research. According to the JDRF, "The SDP provides nearly 35 percent of the publicly-funded T1D research at the National Institute of Health (NIH)." This is HUGE. The JDRF works incredibly hard to obtain private funding, but private donors alone can't fund all the research that needs to be done, and the SDP covers some of that gap. Why is that so important? Because a cure could be waiting to be found in that gap. If the funding isn't there, the research doesn't get done. If the research isn't done, no progress can be made. If research progress is at a stand still, we don't get any closer to finding a cure. THAT is why it's so important.

Hopefully 2013 will bring some amazing new developments in diabetes treatment and technology, and better lives for all of us living with this disease!

Wednesday, July 11, 2012

The Grass Is Always Greener

A lot has been said about the Affordable Care Act lately. All political opinions aside, I'm terrified of what it means for those of us with diabetes. Of course, it all sounds good in theory; however, in practice, I'm afraid that it will be a huge mess that we will all suffer for.

Bottom line, you NEVER get something for nothing. Someone ALWAYS pays for it.

Now before someone gets angry and tells me how politically incorrect or socially irresponsible I am, let me say this: I believe in helping those who are less fortunate. However, I believe in giving a hand up rather than a hand out. The system in place now does not promote individual responsibility; rather, it perpetuates a cycle of dependence that is incredibly hard to break. Yes, I absolutely believe that the current health care system needs some change and insurance companies have to be held accountable for the cost of their premiums, but I don't think this is the way to achieve it.

My fears are these:
  • According to local news stories, young doctors are now planning to retire early. If the doctors believe this law is going to impact them negatively, I don't have much confidence in their motivation/ability to provide adequate care...and I fear that finding the ones who go above and beyond will be exceedingly more difficult.
  • "Free" preventive care? Just like most everyone I've talked to, I believe that we'll be paying for these benefits in one way or another...there might not be a co-pay at the time of the visit, but I'm almost positive that the cost will be accounted for through higher premiums.
  • Similarly, moving toward outlawing discrimination due to pre-existing conditions is a great idea; however, I do not believe for a second that people with pre-existing conditions will be paying the same rate as someone without them.
  • Even if it turns out that I'm wrong, what price will we have to pay? Even if we're charged the same as everyone else, I find it hard to believe that our needs will be adequately covered. Right now, I pay 20% of my diabetes supplies (after I meet a $3,000 deductible...that's a whole different story); in the future, who knows what kind of coverage we'll be settling for...if we'll be able to jump through the inevitable hoops to get some things covered at all.
So in summation, I'm afraid that this law, which was passed with the intent to lower health care costs for everyone, will actually end up costing us more in the long run in one form or another. I don't know what the ideal solution is, but I have a sinking feeling this won't be it.

During my first American Diabetes Month back in 2010, I wrote about how health care issues affect people with diabetes, and me specifically. I correctly predicted back then that my dream of staying at home once we had children wouldn't be possible due to my need for insurance. This adds an entirely new level of suckiness (yes, I'm making it a word) to an already sucky disease...not only do we have to suffer from the disease itself, but we also have to quite literally pay for having it. Let me break it down for you:
  • Test strips--$1/piece; at the current rate I'm using them, $300/month or $3,600/year without insurance; $60/month or $720/year with it.
  • Insulin pump supplies (reservoirs and infusion sets only)--$652/3 months or $2,608/year without insurance; $492.80/3 months or $1,971.20/year with...Before the maternity costs of last year, I never meet my $3,000 deductible. Because of that, I never get my supplies covered under the 80/20 plan, and have to pay them at the contracted insurance rate instead. But hey, at least I get that 20% insurance discount...
  • CGM Sensors--$420/3 months or $1,680/year without insurance; $327.90/3 months or $1,311.60/year with...although I don't use sensors all the time, partly because I don't feel I need to wear them 24/7 and need a break from the skin wreckage caused by the adhesives from the bandaids I wear to cover them, and partly because not wearing them all the time means I can stretch my supplies out longer.
  • Endocrinologist visits--$473/quarterly or $1,892 without insurance; $50 copay or $200/year with.
That comes out to $9,780 without insurance or $4,202.80 with for strictly diabetes-related medical costs, which of course is not including premiums, glucose tablets, or other miscellaneous expenses that I incur thanks to this disease.

Since I work full-time (as a CAD drawing technician for the family business), my employers (aka, my parents) pay 75% of all the employee's insurance premiums. I'm blessed that everything worked out so that I had insurance coverage upon diagnosis and have been able to keep the same policy since then, but I wish so, so badly that we were able to afford private insurance so I didn't have to work full-time. Unfortunately, though, it just isn't feasible for us to forgo my salary and lose my benefits. I realize I'm incredibly lucky to be able to bring my baby to work with me (and have a flexible schedule), but most people don't realize how hard it can be. I don't think I could ever leave her at day care, but it's definitely not easy trying to juggle being a mom and working at the same time (and that's without all the lovely d-related stuff I'm dealing with 24/7). While I'm at work, I have two (/three with the d) jobs going on virtually all the time, and they inevitably interfere with one another...the phone rings, baby wakes up. I need to be working on a drawing, baby is crying. Oh, and by the way, your blood sugar is low...now! It never ends...

Sometimes, like yesterday when I saw a new mom walking with her baby in a stroller on my way to work, I can't help but mourn what could have been if it weren't for this disease and all its related implications for my life. If I didn't have to work (full-time) just so I can keep affordable insurance coverage, I could...
  • Spend more time just enjoying my baby, rather than being frustrated by trying to give her the attention she needs without abandoning my job.
  • Keep up with her baby books, which are currently in a woefully neglected state. Oh, the things I've missed already...Thank goodness for the iPhone, because without it we'd have no proof of her milestones and day-to-day cuteness!
  • Have a clean(er) house, because then I wouldn't have to wait until I got off work to conquer the mountains of laundry and dishes that are always waiting for me at home...If I were at home all day, I could at least throw some loads of laundry in the washer during naptimes/breaks.
  • Similarly, I'd actually be able to have more time to enjoy on Saturdays, which have unofficially become "Get Everything Done That I Couldn't Get Around To During The Week Because There Aren't Enough Hours In The Day"-days, during which I get the floor sweeping/mopping/vacuuming, general cleaning, and other organizing done. Ditto for any days off...
  • Be around for "playdates" and other social occurrences that are a virtually impossibility for working moms...Especially since every one of my mom friends (and all but one of my in-laws) are stay-at-home moms, it's hard for me to miss out on that stuff all the time! "Let's get together tomorrow afternoon and the kids can play!" Yeah, I don't think I'll be able to get off work for that, unfortunately...oh, and that last-minute baby shower/Pampered Chef party/whatever you invited me to? Sorry, I'd love to come (really, I would!) but if I take the time out to go, I'll be catching up on laundry and assorted housecleaning duties for the next week.
  • All of that crafty/artsy stuff I used to do? I haven't had time for any of it in oh, about six months! Working and taking care of the baby (and house) is all I have time for every day, and even at that, something usually gets left out. I have a quilt for my baby girl that I started long before she was even conceived that is still sitting on my sewing machine, about 75% quilted and needing to be binded, but who knows when I'll ever have time to finish it. Oh, and I can pretty much write off any hope of ever doing anything on Pinterest!
Yes, I know you don't spend all day doing fun activities you saw on Pinterest, but that's the way I like to imagine my future life as a SAHM...

I know that being a stay-at-home mom is hard work too (I got to do it for a couple of months, let me remind you!), but right now I have to manage doing everything a SAHM does while working, because there's nobody else around to take up the slack. As much as I love the hubby, he hasn't come around to helping more like I expected he would since I've been back at work, so I'm stuck doing everything I did while I was at home plus working during the day...which is pretty much impossible.  I'd never choose to work full-time if I had the choice. Part-time I could easily do (and would want to do), but I would LOVE to not have to come in Every. Single. Day...Forever.

I don't know what the solution to this dilemma is, and I know that there are tons of people who are much worse off than I am. In fact, I probably sound like a spoiled brat compared to a lot of people! But when you spend the little free time you have surrounded by people who are living the life you want to have, it's a constant reminder of what could have been. On the flip side, I'm sure that some of them wish they could do what I'm doing rather than staying at home...the grass is always greener, right? I completely realize we all idealize the other side of things, and I know I need to work on being happier where I'm at now instead of longing for what (right now, at least) is unattainable. I just hope that by the time Baby Girl is a little older (before she goes to school!), it will be possible for me to spend some time with her at home...


 ‎**Let me just say, it's not my intent to offend you moms who do get to stay at home by trivializing what you do in any way! I'm simply making the point that because of my health status, I'm forced to work rather than having the choice. And when you don't have a choice in what you do, it makes the "doing" so much more difficult...especially when all of the moms you hang out with are doing what you wish you could do! I feel like I'm missing out on a lot, both with my baby and socially, because I literally don't have time to do anything but work-both at my job and at home...

Wednesday, December 7, 2011

Basal Rates, Artificial Pancreata, and D-Judgment

Oh, how quickly time seems to get away from me these days...I intend to write a blog post, then other things come up, and before you know it it's been another two weeks since I last posted!  I have to say, I really admire those in the DOC who are able to consistently update their blogs on a daily basis.  Between managing diabetes (which, of course, is another full-time job) and life in general, I have a hard time keeping up with mine at times.  Sometimes I wonder how I'm going to manage it all once the baby is here, but I know it'll work out...somehow!

At least life according to the D-monster has been better lately.  I was getting frustrated with my numbers and my apparent inability to control them despite all of my effort, so I finally (FINALLY!) took a step back to evaluate the situation.  Duh.  My basal rate patterns didn't make sense at all, and it took me a couple of months to figure that little piece of information out!  I suppose with everything going on, I was just increasing the rates themselves over time without looking at how my overall pattern was functioning (not well, by the way).  The day that I realized this, I decided to start from square one and recalculate everything based on the total daily dose of insulin I'd been using.  To do so, I had to pull out my trusty "Think Like a Pancreas" book by Gary Scheiner and review how to calculate all of the basal/bolus rates and ratios.  With a little math (which I always enjoy--seriously, because I'm a nerd), I had a basal/bolus pattern that was a little more sane looking:

 
Before
After













It had been so long since I'd done such a complete overhaul that I was a little worried about highs and lows the next day, but everything worked out surprisingly well.  It's amazing what a little perspective can do...I was just metaphorically kicking myself for not doing it sooner!  My numbers have been much more even, and I haven't had near as many out-of-range results as I was having before.  Not that they were horrible before; it's just that I'm kind of a perfectionist and like for all of them to be as close to "normal" as possible--is that so much to ask?!

In other D-news, how about that Artificial Pancreas Project?!  I'm so excited that the FDA has started the process that will hopefully lead to approval in a timely fashion.  It's such a major step in the right direction for those of us living with T1, and although it's not a cure, it does represent a major advancement in treatment technology.  For more on what this means for us, please read this article:  Interpreting the FDA Guidance for the Artificial Pancreas

This morning I got a blog update from Jacquie Wojcik at Typical Type 1 in my email, and it was an awesome one.  You can read the full post here, but the general gist of the post was about how judgmental people without diabetes can be at times.  If you deal with this disease, no matter the type, you've no doubt encountered it at some point--if not more frequently.  Even when people don't make rude comments or say anything out loud, sometimes you can feel their judgment anyway.  It can make eating in public a psychologically difficult experience, because you know that if you split a dessert with your lunch buddy, there will probably be somebody who is thinking, "She has diabetes, she shouldn't be eating that!"  It's not that I mind talking about my disease or correcting misconceptions when people are genuinely interested; it's the ones that try to impress their diabetes "knowledge" and horror stories upon you that can be irritating at times.

I like to think I generally have a good, positive attitude and outlook on life, but even that can be challenged when dealing with this type of thing on a regular basis.  I've thought before about printing some of these diabetes etiquette cards for people who don't have diabetes to keep on hand for such situations, but I don't know how well received or effective that would be.  Instead, the action I've taken is one I'm super comfortable with: I wrote.  I mentioned it in my last post, but for American Diabetes Month I wrote an article for our local newspaper about the myths and misconceptions surrounding the disease so that maybe-just maybe-it will reach those that need to know these things.  Like I've said before, even though it's hard, I can deal with the negativity...it's the kiddos who live with diabetes that I worry about.  Life with this disease is hard enough without having to defend yourself and your decisions all the time.  We already have to micromanage ourselves, so it's no fun when others try to do it for us as well.  Like one person in the comments said of Jacquie's post,  "It’s amazing how much more people care about/watch what I eat since I was diagnosed Type 1. They didn’t give a crap about what was on my plate before."  So very true.  The not-so-nice part of me sometimes wants to ask these people, "So just because you don't have diabetes, it's okay for you to eat that third piece of cake?!"  But I don't, because I could never actually say that to anyone, no matter how rude they've been to me.  In the end, I have to realize that there are some people who just don't get it.  I can try to change their perceptions, but sometimes their ideas are so long-held and concrete that there's not much anyone could do or say to fix the situation.  So instead, I just try to do the best I can and educate the ones who are willing to learn.

Friday, October 28, 2011

Diabetes Article in Health Magazine--Another Setback

I was initially excited when I saw an article in the November 2011 issue of Health magazine about diabetes—after all, November is American Diabetes Month!  However, once I started actually reading the article, I was appalled.  Not only was it filled with misinformation and incorrect but rampant diabetes stereotypes, it was completely insensitive.  No wonder people like the woman in the article are “embarrassed” to let others know they have diabetes!  What disappoints me the most is to see such a great opportunity for public education and awareness turned into such a misrepresentation of the disease…a misrepresentation that people with diabetes, like myself, have to fight every day to correct.
I was diagnosed last year with type 1 diabetes.  My younger sister also has type 1, and my dad (along with a lot of my extended family) has type 2.  When I was diagnosed, I made it a point to learn as much as I could about the disease, and have read countless books on the subject.  I also keep up with diabetes news and research and follow others’ diabetes blogs on a daily basis in addition to hosting my own.  In addition, I was recently appointed as a board member for the local branch of the JDRF.  Even though it’s not my paying job, diabetes advocacy is incredibly important to me.  The biggest problem I encounter, however, is not that people don’t know about the disease; it’s that what they think they know is usually incorrect—and usually, it’s due to years of exposure to myths and half-truths about the disease, thanks at least in part to media publications such as this one that further reinforce its falsehoods.
Although it is true that being overweight or obese is a risk factor for developing diabetes (at least for type 2, that is), it isn’t the be all and end all of the disease.  First of all, not everyone with diabetes is overweight.  Type 1 diabetes develops irrespective of weight or health status, and there are many people with type 2 who are of normal weight.  Furthermore, what many sources neglect to point out is that you have to have the genetic predisposition and other risk factors to develop the disease—therefore, not all people who are overweight will develop diabetes.  Secondly, losing weight is not a magical “cure” for the disease.  I have a real problem with people using the word “reverse” in relation to the disease, because “reversing” diabetes is simply not possible.  Remission is a better word, because it at least acknowledges that if you gain the weight back, change your activity level, or become ill, the symptoms of the disease will return.  What is most important to note, however, that even in symptom “remission,” the disease is still very much there.  Diabetes is a progressive disease, and insulin resistance (the main disease mechanism of type 2 diabetes) increases with age.  Even those who are initially able to completely manage their diabetes with weight loss might eventually have to pursue more aggressive treatment options as the natural progress of the disease occurs.  Failing to recognize this is simply dangerous, because it leads people to believe that once their disease is well-managed, it will never be a problem for them again.  I truly believe that this leads a lot of people with type 2 diabetes to not get the proper care and treatment that they need, because they then fail to give their disease the attention it requires.  Therefore, to call weight loss a “groundbreaking new way” to treat diabetes is not only ignorant (weight loss has been used as a part of treatment plans for type 2 diabetes for years), it is also incredibly irresponsible—and to call the woman in the article a “former diabetic” only serves to reinforce this dangerous fallacy.
Articles like this one are responsible for supporting incorrect and negative ideas about diabetes that those of us living with the disease are forced to combat on a daily basis.  The statement that “Most people with type 2 diabetes could actually reverse it if they lose enough weight” is especially harmful, because it bolsters the notion that diabetes is a “fat, lazy person’s” disease that could be controlled if only they would work hard enough.  This stereotype is not only hurtful and extremely insensitive; it also has the potential for damaging fundraising efforts…after all, why contribute to diabetes research if it’s something people can “cure” themselves if only they’d work hard enough?  For those of us with type 1, especially children, this typecast is particularly harmful.  Many people do not understand the differences between the two types of diabetes, and all of these ideas could lead to dangerous non-management of the disease.  There is also a growing problem among adolescents with type 1 in which patients will purposefully withhold insulin in order to lose weight.  This leads to dangerously high blood sugars that force the breakdown of muscle and fat, but can also cause diabetic ketoacidosis and other complications.
These are the reasons I felt compelled to write such a lengthy, detailed letter...a letter that was too long to actually send to the editor, of course!  Articles on disease awareness (especially in major publications) are wonderful, but only if they contain accurate information.  In the future, I beg all magazines to please keep this in mind when undertaking such ventures!  Diabetes awareness and education is achieved one person at a time, but so are harmful setbacks.  I hope that from now on, all publications will make an effort to be part of the former.

For those of you who are interested in reading the article in its entirety, it begins on page 95 of the November 2011 issue of Health.  I couldn't find it online, otherwise I would have linked to it here!

Friday, October 21, 2011

Spreading the News/JDRF

Last week I got some amazing news that I couldn't wait to share...But since "real" life often gets in the way of blog posting, I had to wait until I got caught up on everything before I could post anything.  Now that I have a break in my workload (but not my personal life!), I decided I better take advantage of it and get to writing!

This past Thursday, I received a call from my CDE while I was at work.  After some catching up, she told me that the Panhandle Branch of the JDRF, based in Amarillo, was trying to expand awareness into other areas around the Texas Panhandle.  She said they had an opening on the board, and was wondering if I would be interested in taking the position since I live in a small town in the surrounding area and because she thought I would be a good fit for the "job."  She told me that they had a board meeting that day and that after she brought up my name for nomination and they voted on it, she would let me know something.  After I got off the phone with her, I couldn't help but tear up as I was telling my mom about it...Not only do my pregnancy hormones have me in tears more often than not these days, I was just so honored that she would think of me for something so special!

I am incredibly excited for the opportunity to be involved in raising diabetes awareness, especially on such an awesome level for someone as relatively young as I am (at least I think 23 is still considered "young" these days!).  I had always told my family that I wished I could become a CDE in order to help people in our area manage their diabetes better, but since that requires prior experience as a nurse/psychologist/dietician/etc., there is no way that it would be an option for me--at least not anytime in the near future.  As a local JDRF board member, I will be able to be a part of diabetes education, outreach, and fundraising while still maintaining my regular job, which is something I didn't think would ever be possible.  I was already planning on writing an article for the local paper in November for American Diabetes Month, but now I can do it in a more "official" capacity!

This morning I got a call from the two of the ladies from Panhandle JDRF welcoming me to the board and filling me in on the details about what's to come.  They want to organize some school walks around the area, and I'm ready to get involved!  The next few months are going to be busy ones for me (especially since we only have around 14 weeks or so before our little princess is here!), but I know that God usually gives us these kinds of opportunities when we least expect them, and it's up to us to take advantage of them.  I would have never in a million years let this pass me by, and I am so grateful to everyone involved for giving me the chance!

Before I go, I wanted to share the link to the Artificial Pancreas Petition for the JDRF.  If you haven't already signed it (or heard of it), I would encourage you to follow the link to find out more!  This is the biggest advance in diabetes technology in our lifetime, and it has the potential to change lives--so needless to say, it's very important that the FDA approves it.  It only takes a minute, but it will make a big difference in the lives of those with diabetes!

JDRF Artificial Pancreas Petition

Friday, September 2, 2011

The Great Vaccine Debate

I decided yesterday that it was time for a change, so I revised the design of my blog and even got a new profile picture to match-and it actually looks kind of like me, so I thought that was pretty cool!  Every time I decide to embark on a blog makeover, I end up all tense with achy-shoulders from trying so hard to find the right html code to change in order to get the look I want, because the templates rarely work 100% for me.  Anyway, I somehow managed to get it decent-looking, so now I can finally relax!

I had another OB appointment on Tuesday, mainly to do the blood work for the quad screen prenatal testing that we decided to go ahead with.  Long before I was pregnant, I was undecided on the issue of finding out the risk level of having a child with a genetic defect or disorder (like Down's Syndrome or Trisomy 18), but since then I came to the conclusion that IF there was something wrong with our child, I would want to know before birth so I could be prepared for the challenges we'd have to face and get somewhat more mentally/emotionally adjusted to the fact, if that's possible.  A big needle stick (like I'm not used to that...), and 10 days later we should have our results.  They said no news is good news, so that's what I'm hoping for!

Prenatal testing, as I've discovered, is just one of the many difficult parenting decisions you have to make before your child is even born.  From breast/bottle feeding to the circumcision issue for little boys and even pacifier use (or not), there is plenty of controversy surrounding all of these choices.  People on both sides of every issue are passionate about their position, and few are willing to modify their ideas.  None of these debates, however, is quite so polarizing as the issue of vaccines.

Every time I come across an interesting article on vaccines, I post it to Facebook.  I am absolutely pro-vaccine, and passionately so...therefore, whenever I encounter these articles online, I opt to share it with my friends because I think everyone should have the best information possible to base parenting decisions on.  The first was an article about pediatricians who refer kids that aren't vaccinated to other physicians--as the article says, "no shots, no service."  The American Academy of Pediatrics stated that by instating policies like this, these pediatricians might be preventing unvaccinated children from receiving proper health care.  The bigger issue in my eyes, though, is that these children aren't being vaccinated in the first place-is that not considered "proper health care" too?  After all, babies can't decide whether or not they receive vaccines; it's the parent's choice.  And with so many rampant rumors and misinformation on vaccines, more and more parents are making the decision to not vaccinate their children or to delay their shots based on invalid information and anecdotal evidence from parents who claim that their children were injured by vaccines.  The thing that saddens me most is that these children aren't receiving the recommended health care because their parents either do not have access to accurate information, or simply choose to believe that the vaccine schedule is part of a big government/pharmaceutical conspiracy.  What they fail to realize, though, is that vaccines offer very little profit for the manufacturers (especially compared to other pharmaceutical drugs), and that the government has little to gain from children being vaccinated other than an assurance that the threat of disease outbreaks in the country is reduced.  I am not saying that politics do not influence medical issues and vice versa; I am just saying that given the current situation, I do not believe the vaccine conspiracy theory that anti-vaccine advocates are so quick to force.

In all honesty, I think that vaccines should be required by law in all children who aren't allergic to them or have compromised immunity for whatever reason.  The reason I believe this is very simple: the more children who aren't vaccinated, the greater the threat to herd immunity.  The second article I posted regarding vaccines on Facebook was a story about a little boy with leukemia who could not be sent to day care because his parents could not find one in which all of the children had been vaccinated.  The reason this was of such great importance was because this little boy, whose immune system was compromised due to chemotherapy, could not receive vaccines during his treatment--therefore, he (like many others, including young infants and other immunocompromised individuals) relies on herd immunity to protect him from the diseases that vaccines would ordinarily offer protection against.  The problem that scientists and doctors are seeing, though, is that in communities where so many parents are making the choice to not vaccinate their children, herd immunity is compromised so much that diseases that were once thought to be basically eliminated from the modern world are gaining a foothold once again.  As a result, children (both those who are too young or cannot receive vaccinations due to compromised immunity and those whose parents choose not to vaccinate them) are dying of preventable diseases.

Regardless of your views on vaccines, you only have to look at recent news stories to know that this is true.  Last year, the pertussis outbreaks in several states were devastating.  The numbers of children affected by the disease were disproportionately higher than previous years, and many investigators believe that it is at least partially due to the anti-vaccine movement.  It's pretty simple, really: the more unvaccinated children in a given population, the lower the percentage of vaccinated individuals; the lower the level of herd immunity, the greater the chance of disease outbreak.  What scares me the most about this is that the diseases that are emerging in epidemic proportions again are so threatening to babies who are too young to receive the vaccines that would protect them.  The first shot for pertussis, for example, isn't given until 2 months as part of the DTaP vaccine.  Before then, babies are vulnerable to the disease, which can kill an infant in a very short amount of time.

What I've encountered in posting these articles is that anti-vaccine proponents are quick to say, "Well if vaccines do such a great job of protecting your child, you shouldn't be worried about my unimmunized child making them sick."  No matter how often I get this reaction (and it happens surprisingly frequently), it still frustrates me to no end.  First of all, who are you to tell me that I shouldn't be worried about my child's health?  Of course I'm going to worry about my little one getting sick, and I absolutely worry about them being exposed to unvaccinated children for this very reason.  Secondly, if you know ANYTHING about vaccines, you know that they aren't all given on day one...so until they're given the vaccination for a particular disease (which may be months down the road), they're vulnerable to it--it really is that simple and obvious.  The more I've thought about it, the more I realize that this reaction is just part of anti-vaccine advocates' self-affirmation toolkit--the more that they can convince themselves that their children aren't going to be infected with and/or spread diseases, the more they believe they're making the right decision in not vaccinating them. 

I've also found that anti-vaccine supporters tend to surround themselves with people who think the same way they do.  My husband was raised Mennonite, and although he received all of his vaccines and believes the same way I do, there are a lot of people within that group who are part of the anti-vaccine movement due to all the popular horror stories and rumors of vaccine injury.  As Seth Mnookin points out in his book "The Panic Virus", being around other people who support your way of thinking seems to validate your decision: "[...]sustained encounters with a small group of like-minded people almost inevitably lead to the conclusion that everyone thinks the way you do." (pg. 141, Nook version)  Never mind that 90-95% of the population in almost any given area of the country vaccinate their children; being around other anti-vaccine advocates (who are part of the other 5-10%, mind you) confirms that you're making the "right" decision, even if it goes against what the majority of the general public does.  I'm not saying that the majority way is always the right way; it's simply that on this particular health issue, it's logical to assume that if virtually everyone else is vaccinating their children without ill effect, you can be reasonably confident that your child is not going to suffer any adverse reaction from being vaccinated as well.  In fact, the chance of contracting one of the vaccine-preventable diseases is about 20 times greater than being injured in any way from the vaccine.  To further break those numbers down, if the risk of being infected with disease X is 1 in 1,000, the risk of having any ill effects from the X vaccine would be 1 in 20,000.  Furthermore, the transmission rate of most of these diseases is anywhere from 80-100%, so that gives you a 0-20% chance of NOT contracting the disease if you're not vaccinated against it.  Given those odds, I don't see how anyone would willingly not vaccinate their children without a valid medical reason.

Anti-vaxers also like to make the argument that if their child is sick, they're not going to expose them to others.  However, this is a simple statement to refute as well.  Many of these vaccine-preventable diseases have incubation times that are such that you could go days or weeks without realizing your child has been infected before they start to have obvious symptoms.  Pertussis, for example, first appears as a normal cough/cold before turning into full-blown whooping cough.  What parent keeps their child home from school (or any public place) every time they have a simple cough or cold?  I'd wager that it's not many. 

I've had this debate several times on Facebook, and one person even asked me point blank what the chance was of their unimmunized child giving a vaccinated child one of these diseases.  Never mind that the point of the article at hand (the one about the boy with cancer) was the danger posed to children who couldn't be vaccinated (yet), or that the occasional immunized child who for whatever reason does not get full protection from the vaccine(s) they receive also relies on herd immunity; this is what I replied:
[...]Therefore, the disease transmission rates (percentage of susceptible individuals who will become infected by an infected individual, where the susceptible individual is a person with a compromised immune system or one who has yet to receive the vaccine due to being too young) vary based on the particular disease. For pertussis, the transmission rate is 80%+. For measles, it's nearly 100%. This means that when a non-immunized child becomes infected with one of these diseases, the chance that they will infect a susceptible child they come into contact with is 80-100%.

As mentioned previously, there have been many recent cases in which a non-vaccinated child contracts a disease and in turn causes an outbreak. Most notably, there were 21 cases of measles outbreaks in Minnesota in April this year, of which 85% or more were linked to one unvaccinated child. In Utah, another child may have exposed up to 1,000 different people in two different events to the disease. The pertussis outbreaks last year have been linked to the large percentage of children who were nonimmunized, infecting infants who were too young to receive the vaccine and for whom the disease is often fatal. So clearly, it's a very real issue, especially when it comes to the recent epidemics of vaccine-preventable diseases in the U.S.
I also linked to two more articles (here and here) about how recent disease outbreaks have been linked to the anti-vaccine movement and how it is fast becoming a social health issue.  Never mind that the original "study" linking vaccines to autism, conducted by Andrew Wakefield in 1998, has been found to be fraudulent (and, in fact, clearly should have never been published if you read chapters eight and nine of Seth Mnookin's "The Panic Virus") and completely baseless, emerging from his illogical connection between the measles part of the MMR vaccine and bowel disease (yes, bowel disease), leading ultimately to autism.  Even after hearing about the Wakefield study being invalidated, I never realized the full ridiculousness of his claims until reading Mnookin's book.  No matter how crazy and unfounded, however, it is easy to see how claims like Wakefield's can so quickly influence the public's perception and how difficult it can be to undo the damage once it is done.  The media loves a good public health scare, and articles confirming vaccine safety aren't as newsworthy or attention-provoking.  Therefore, once the public is sufficiently enraged over a perceived issue, the retraction or correction barely registers in the collective psyche.

More recently, a review of the current literature on vaccines was completed by the Institute of Medicine (a division of the National Academy of Sciences) and confirmed that vaccines are generally safe.  Before anti-vaccine advocates can shout bias or conspiracy, it is important to point out that this study is unique because it reviewed over 1,000 existing studies on vaccines.  So unless thousands of scientists are publishing falsified research in legitimate, peer-reviewed journals (unlike the some other "scientific" publications, which will admittedly publish any article, even those that appear to be questionable at the onset), it would be hard to refute these findings.  On a Facebook page for Pregnancy and Newborn Magazine, which posted a link to this article after I did, Organic Baby University commented on the link that "I would love in just one article or news piece from someone to provide the actual studies they used to determine no correlation. Never seen a link or attachment or anything to provide the public with the ability to read those studies that prove it. Just that they exist. As educators we would love to read the scientific studies!"  Another person and I both replied with the link to the bibliography from the study.  Perhaps after reviewing 1,000+ research articles, some anti-vaccine advocates will feel more comfortable with the conclusion that vaccines are, in fact, safe. However, there will always be those that dismiss any evidence in favor of vaccines as part of a conspiracy, even though this review was completed by an 18-member committee and included research by thousands of scientists!

That's the thing that has been the most striking about this debate for me--no matter what evidence you provide to anti-vaccine proponents, they would rather believe anecdotal "evidence" from people who have no medical background (not that I claim to have any medical training; I simply rely on facts from those who do to guide my decisions) over scientific fact.  Controlling for any potential biases, I just can't understand why anyone would believe that every single study confirming vaccine safety and neccessity is somehow "not real," or not to be trusted, or that peer-reviewed studies should not be used as a legitimate basis for decision-making.  Just last week, one of my closer friends (who does not vaccinate her child) deleted me as a friend on Facebook because she and her husband were offended by my posts on the subject.  She also took issue with the fact that my husband and I are choosing to not expose our baby (which will be born in February, the height of cold/flu/RSV season) to unvaccinated children until he/she can be immunized, because once again, she posed the question "If vaccines do what they say they do, why should you be concerned about our child?".  After I refuted this claim (again), I told her that my husband and I have every right to do what we feel is needed in order to protect our child.  I would rather take extra precautions to protect him/her and risk stepping on some toes rather than our little one getting sick when we could have prevented it.  I will choose protecting our baby over hurting someone's feelings any day, end of story.  I also told her that while I agreed that being a mom is a job that takes heart, I didn't see how my making educated decisions based on facts would make me any less of one.  I told her that if she chooses to believe other things over scientific fact, that's her decision-but it certainly isn't mine, and never will be. I simply could not make a decision about my child's health that goes against everything I know, simple as that.

I know that all of these people who choose not to vaccinate their children do so out of legitimate concern for their child's wellbeing and feel that they're doing what is best for their children, but it saddens me to know that they do so without accurate information to base their decisions on.  I believe that parenting decisions should be left to the parents until those choices affect my child's wellbeing-or theirs.  There is a reason why you can't get a religious or philisophical exemption for drunk driving or illegal drug use-it's an issue of public health and safety...The thing is, I don't know how many more children are going to have to die from preventable diseases until something is done about the issue.

Thursday, January 20, 2011

Heated Debate: Does Diabetes Ever "Go Away"?

I subscribe to feeds/email updates on several blogs that I regularly follow.  On Tuesday, I received one from "Keeper of the Home, Naturally Inspired Living for the Christian Homemaker" with a post from a guest blogger entitled "What is 'Real' Health?"  http://www.keeperofthehome.org/2011/01/what-is-real-health.html  Although the basic tenants of the author's message were good (eating and living healthier to achieve better health), I took issue with her including diabetes on her "Signs of Not So Good Health" in the article.  It was not the fact that she was suggesting that a better lifestyle would make you healthier that angered me (in fact, I agree 100% on that one); rather, it was her argument that losing weight and improving diet & exercise habits would make Type 2 diabetes go away. 

Here is my response:
I have Type 1 Diabetes. It is not because I'm "unhealthy"; I'm not overweight, I eat right, and I take care of myself. Type 1 Diabetes is an autoimmune disease caused by a genetic predisposition paired with an environmental trigger...Not bad health. Unless by bad health you mean an entirely unpreventable genetic predisposition coupled with a similarly inexorable environmental factor. To suggest otherwise is to further reinforce the notion that these diseases are the person’s fault and that a change in diet is going to make them go away. Becoming and staying as healthy as possible isn't going to make Diabetes of any kind "go away". It may become more controllable and something that doesn't require as much daily disruption, but once you’re diagnosed with it, it's always going to be a serious health concern that requires attention. To suggest otherwise is simply irresponsible. There are already too many people that ignore their Diabetes to the further detriment of their health; too many “miracle cures” that encourage people to stray away from the proper management of their disease.
Therefore, to include Diabetes on your "Signs of Not So Good Health" is to misinform the general public and further reinforce the common misconception that all Diabetes is caused by poor health habits, such as eating too many sweets. This gives some people without diabetes a superiority complex that causes them to make people with Diabetes feel like it is THEIR FAULT they developed the disease. It’s so important to point out that you have to have the gene to get Diabetes--you could be 500 lbs and not leave the couch all day, but if you don’t have the gene, you’ll never develop the disease. Yes, the incidence of Type 2 Diabetes is on the rise, and some cases are preventable, especially in those who are overweight or obese. Being diagnosed with Prediabetes in particular allows the person an opportunity to become healthy and prevent the development of Type 2 Diabetes.
Don’t get me wrong, I’m all for being/becoming as healthy as possible; since being diagnosed with Type 1 Diabetes, I’ve become the healthiest I’ve ever been. Being diagnosed with a chronic illness is a major motivation to take care of yourself as well as possible. HOWEVER, as I’ve already stated, it’s horribly detrimental to misinform both the people affected by these diseases and those who are not because it makes life harder for those of us who have to deal with the day to day challenges that these diseases entail. It’s not something you can “overcome;” it’s only something you can manage as a part of living well. I don't doubt your intentions are good, and the overall message is great, but in the future, please, please, PLEASE review the current medical literature before making claims of this nature, especially since there are many who will take your word as scientific fact.
I received this reply from the "Keeper of the Home" site admin/main blogger:
@Ashley, I think that Kate was probably referring more to Type 2 diabetes, which develops later in life. Type 1 diabetes is certainly a serious illness that needs to be properly treated. I do think it's important to mention that it can be managed in many cases through dietary and lifestyle changes, as it sounds like you yourself have done. :)
To which I responded:
http://www.keeperofthehome.org/2011/01/what-is-real-health.html#comment-53775, I agree that she is most likely referring to Type 2 rather than Type 1 Diabetes. However, it would have been helpful for her to mention this, as the two Types are very different in their causes and treatment!
I have been making dietary and lifestyle changes, but this only helps to some extent--eventually, most people with Diabetes (of either type) will need insulin to properly control their BG numbers (according to my CDE and the classes I've taken), which in turn prevents complications. And after all, isn't that the most important thing?
I elected to make this switch early on, while I'm still in the "honeymoon" phase of Type 1 (when your body still makes some insulin and numbers are easier to control). I started with diet & exercise, then moved on to Janumet (sitagliptin/metformin) when my numbers were inexplicably high. This was around the time we found that I had slow-onset Type 1 rather than Type 2 Diabetes. My numbers kept rising, so I chose to start insulin therapy recently. I think the end result (lower BG numbers and less risk of complications) is much more important than the form of treatment, be it diet & exercise, oral meds, or insulin. It's also important to point out that the failure of any of these treatments (not including insulin, of course) does not mean the patient is being noncompliant or not making healthy lifestyle choices; sometimes, the current treatment simply isn't enough to properly control the disease. This may seem like a minor distinction, but trust me, when you already feel like it's somehow your "fault" you developed this disease, it means the world to know that some things are truly beyond your control and sometimes will not respond to the changes you're making, however positive.
Again, I agree that dietary and lifestyle changes are very important not only to disease management, but to overall health...But again, this disease usually requires much more than that to be properly managed! =)

From the post's writer:
@Ashley, Yes, I was talking about Type 2. And it's critical to understand that MANY of these cases CAN be completely managed or eliminated. There are plenty of people I've talked to who have! Drew Carey would be the most famous and recent example....
The thing is, in type 2, it's primarily about insulin resistance, often due to obesity. If you can lose weight and get your adrenal glands on track, and your hormones working properly, your body will not be resistant to insulin any longer. This is not true in type 1; but it is true in type 2. Many, many people CAN make changes to be healthier! And many have.
I am also not intending to "blame" anyone for their health; in most cases, diseases developed because there was a lot we did not know. Most people believe they are doing their best because they only have so much information. Doctors often don't tell people the right stuff. Such as, eat lots of grains, fake sugars, and not too much fat! That's a recipe to get sick, but it's what doctors tell you. So it is not anyone's FAULT, I am just saying that regardless of where you are, you can feel good again, you can have hope.

And finally, my reply to that piece of information:
http://www.keeperofthehome.org/2011/01/what-is-real-health.html#comment-53783, Managed, yes. Eliminated, no. Even if, as you suggest, insulin resistance is decreased through weight loss, it doesn’t change the fact that you have diabetes. Your pancreas produces less insulin over time, so even if weight loss fixes the problem in the present, your blood glucose numbers will likely rise again in the future and require attention again. Insulin resistance does not “disappear” in these cases; it is simply much more manageable as your body more efficiently uses the insulin it makes. But what about the cases of Type 2 in which the body doesn’t produce enough insulin in the first place? In these cases, it’s not insulin resistance that is the problem, but insulin deficiency. Many Type 2 patients have some features of both of these problems. Again, as pancreatic function decreases and produces less insulin over time, the symptoms of diabetes will return down the road for many of the patients who are initially able to eliminate them through diet & exercise/weight loss.
I should add that although my sister and I have Type 1 Diabetes, my dad has Type 2. He was able to manage his through diet and exercise alone, which led to a 30 lb weight loss. He no longer has to check his BG several times a day or even several times a week, but he is still careful to watch what he eats and exercise as he should. His endocrinologist, whom he still sees every six months, still considers this Type 2 Diabetes, albeit well controlled. Any diabetes expert will tell you this…Diabetes is a lifelong disease, and although it can definitely be well managed through the lifestyle changes you’re suggesting, it never goes away, and to suggest this is simply dangerous. I’ve read literally a dozen books on the subject over the past five months since my diagnosis, and I keep up with the latest news and research related to it on a daily basis. The best response I can give you is an excerpt from the ADA’s Complete Guide to Diabetes (4th Ed., 2005, pg. 48):
“Despite what you might read in the newspaper or be told by friends or relatives, there really is no such thing as a ‘touch’ of diabetes. What people may be talking about is type 2 diabetes, which often responds well to healthy eating and regular exercise and may not have yet shown any signs of damaging body parts. Or they may be describing gestational diabetes, impaired glucose tolerance, or pre-diabetes.
The reality is that diabetes is a serious, life-long disease. Describing someone as having a touch of diabetes is like saying a woman is ‘a little bit pregnant’—it just isn’t true because both are ‘yes or no’ conditions.
Once diagnosed, diabetes doesn’t go away, although there may be times in your life when it’s easier to manage. If this happens, you may be tempted to think your diabetes is cured, but don’t forget that there will also be frustrating periods when nothing you do seems to help keep blood glucose levels where you want them. Aging, weight gain, an injury that makes it harder to get regular exercise, or a gradual slowdown of insulin production all make diabetes harder to manage. When these things happen, you’ll need to adjust your diabetes therapy to match your body’s new needs.”
Again, managed. Not eliminated. This may seem like a minor distinction, but I think it's important to differentiate between being asymptomatic and being cured. Yes, weight reduction often does decrease the symptoms of diabetes and can make it more manageable, even leading to a decrease or elimination of treatment in some cases, but the disease is still there. If that person goes back to their unhealthy habits or gains the weight back, the symptoms of the disease will return, as the will in many cases simply due to aging and a decline in insulin production. To suggest that diabetes is "cured" in these cases is irresponsible because it causes those who should be monitoring their disease (even if they are symptom free at the time) to not give it the proper attention, which could lead to complications. If they didn't realize that they needed to begin treatment again and their blood glucose levels are rising (which in many cases doesn’t lead to obvious symptoms), it is doing damage to their organs in the meanwhile.
I am also well aware of the example of Drew Carey "curing" himself of Type 2 Diabetes with weight loss, but as you can see from the online diabetes community, his statements have angered many of us who have to live with this disease. He had the opportunity to educate the public on diabetes, and instead contributed further to misinformation. Please read this blog post written by sixuntilme, a well-known and respected diabetes blogger and person with diabetes. She explains the whole "weight loss/diet & exercise as a cure for Type 2 diabetes" thing wonderfully. http://www.blogher.com/there-no-cure-diabetes
It's your choice if you would rather believe anecdotal "evidence" or hearsay over scientific fact and medical expertise, but please take care when you express these opinions as fact in the public arena...As sixuntilme points out, it really does make life harder for those of us dealing with this disease because it minimizes its seriousness and further contributes to the wide array of misinformation and myths surrounding it.

I hope I wasn't too harsh in my responses, but it truly does irritate me when people who know very little about diabetes try to impress their "knowledge" upon me.  Not only that, but as I said in my replies, portraying personal opinions (which in this case, are simply myths and anecdotal evidence) as scientific fact not only has the potential to harm those who need to closely monitor their disease, it also reinforces the misconceptions about diabetes that those of us who deal with it on a daily basis fight to correct. 

It's like the time that a lady told my mom that her preacher used lemon juice to lower his blood sugars, and that my sister and I should keep a bottle of it nearby in case we have highs.  It's in those cases that usually I shake my head and say "okay," while in reality I'm thinking, "Seriously, lady?  My pancreas doesn't work.  It doesn't produce insulin any longer.  Lemon juice will not do diddly squat to reduce my numbers..."

The reason this "advice," though I'm sure well-meaning, angers people with diabetes is because it minimizes the effort it takes to truly control the disease.  Those who don't have to deal with the several times a day (or sometimes hourly) finger sticks; oral meds with not-so-fun side effects (I'm talking about you, metformin!); injecting insulin into our abdomen, thighs, arms, or butt; constant worrying about where your blood glucose numbers are at, whether they'll lead to long-term complications, and hoping your insurance will cover all the numerous doctors visits, testing supplies, medications, and medical devices it entails, simply can't understand what it takes to make sure that this disease stays well-controlled and simultaneously trying to not let it take over your life.  I know I didn't until I was diagnosed.  Not until you've walked a mile in my shoes...

Furthermore, as sixuntilme pointed out in her similar blog post (which I highly recommend reading if you're interested in the subject http://www.blogher.com/there-no-cure-diabetes), the argument that weight loss is a "cure" for diabetes simply perpetuates the myth and the thinking that those of us who have the disease simply aren't working hard enough to keep it in check.  This thinking is not only dangerous, since there are already so many people with diabetes who ignore their disease, but it also diminishes its importance to the point where it may affect funding for research.  We need a real cure, and what we're getting instead is a bunch of bologna from people who have no idea what they're talking about.  I'm no medical expert, but as soon as I was diagnosed I made it my personal mission to learn as much as I can about the disease so that not only can I properly manage my diabetes life, I can advocate and educate people on it. 

This type of media coverage (along with the celebrities' stories on "curing themselves" or "switching from Type 1 to Type 2 by 'weaning themselves off insulin'" [hello, Ms. Halle Berry]) isn't the kind we need.  It's people like Kevin Kline and Brett Michaels (who are both careful to keep their public statements on diabetes in line with scientific fact) who are true examples for the diabetes world and ambassadors to the general public.  And not to mention my fellow D-life bloggers, Lyrehca, sixuntilme, lisafromscratch, and the TuDiabetes Community, to name a few.  They help those of us dealing with diabetes feel like we're not alone (as it often seems) with this disease.  Because let's face it, sometimes it feels like it's us against the non-diabetes world and it helps to know there's someone out there, even if they're halfway across the country, who is going through the same things we are.

Thursday, December 9, 2010

Diabetes in the News

I was trying to think of something to write about next, and I finally got my answer while surfing the web yesterday.  On MSN.com's home page, one of the headlines was "6 Misconceptions & Myths About Diabetes", with other diabetes-related articles below.  I was excited to see that diabetes was getting some face time, but I was slightly disappointed by the content of the articles after reading them.

6 Common Myths and Misconceptions About Diabetes
http://health.msn.com/health-topics/diabetes/articlepage.aspx?cp-documentid=100266985&gt1=31010

In this article, Sue McLaughlin, former president of healthcare and education at the American Diabetes Association, expounds on the most common myths about the disease.  Most of her advice is spot-on, but I had a small problem with #5:
"A diabetes diagnosis means you automatically need insulin. That's the case with type 1 diabetes but not with type 2 diabetes. In some cases, proper diet, exercise, and oral medications, if needed, can keep type 2 diabetes under control for some time before insulin becomes necessary, McLaughlin says. The key is to make a lifestyle change. That means no smoking, more healthful eating habits, and regular exercise."
Don't get me wrong; it's nothing but the truth.  However, I think that her statement about insulin may further discourage those with Type 2 from taking insulin when often it could be a great option for treatment.  Research is showing that by starting insulin right away (instead of as a last resort after medications and diet have failed to be effective), the pancreas' beta cells (the ones responsible for insulin production that are damaged by diabetes) may be preserved from further destruction.  I am all for making that lifestyle change she talks about, but I'm also a big proponent of finding the absolute best treatment for your particular case, and that very well might include insulin.

Aside from that one minor complaint, I found this article to be informative, especially for those who may not be familiar with the disease and might stumble upon it as I did.  Mainstream media is a GREAT way to raise awareness, so I'm happy when diabetes makes the top headlines.

4 Easy Steps to Lower Your Diabetes Risk
http://health.msn.com/health-topics/diabetes/articlepage.aspx?cp-documentid=100267080&gt1=31010

When I first read the title of this article, I was intrigued.  You often see articles on prevention of other diseases, but rarely do you come across one in the headlines on the prevention of diabetes.  Dr. Judith Fradkin of the National Institutes of Health's "4 Easy Steps..." are just that--short and easy.  However, I don't see how they really apply to the prevention of diabetes specifically.  Yes, they are essential steps for achieving good overall health and preventing obesity or losing weight, which are both key to preventing Type 2 Diabetes. 

However, I don't like the correlation she makes between eating sugar and the prevention of diabetes...After all, the first article clears up the myth that eating too much sugar causes diabetes, so why lead people to believe that it's true?  Again, I know that eating less sugar is a great idea, but it's not going to prevent someone who has the genes and other environmental factors from getting diabetes, according to my understanding. 

Losing weight, exercising, eating whole grains, and getting better sleep are all good things for anyone to do, and very well may help prevent someone with the predisposition from developing Type 2 Diabetes.  What the author didn't mention, however, was that there are no guarantees when it comes to disease prevention.  In my case specifically, I was relatively healthy, and I still ended up getting diabetes.

Finally, right under the links for those articles, there was a link to Bing search for "Find delicious recipes for diabetic diets"...Right after the myths & misconceptions article specifically noted that there is no "diabetic diet".  I'm not convinced I'm the only one who notices these things...

Maybe I'm being too picky, but the way I see it, if they're going to put these articles front and center, I wish that they would ensure that the information in them is current with today's medical knowledge about diabetes.  Otherwise, they may just be contributing to the very misinformation they're trying to clear up.

Sunday, November 14, 2010

World Diabetes Day

Week 2: ACT
Sunday, November 14

World Diabetes Day – Today is World Diabetes Day, recognized by the United Nations, so across the globe people are taking an action to raise diabetes awareness. What about you?

I'm so glad that diabetes awareness has taken on the global scene in the form of World Diabetes Day...Hopefully there will be a World Diabetes Month before too long!  My involvement in diabetes awareness really began in full force with American Diabetes Month at the beginning of November.  I decided that the best thing I could do to participate would be to share my experience with being newly diagnosed with the disease with the masses through this blog.  My hope is that I can help someone somewhere live better with diabetes, or at least feel like they're not alone in dealing with it.

If you've been reading my posts, you probably know my story; however, since we're halfway through the month, I thought I would share a little bit about my situation for those who may be new to the blog.  So...I'm Ashley. I'm 22 years old, an August 2009 graduate of Texas Tech University, and a newlywed since January.  A couple of months ago (August 23rd to be exact, and ironically, our seven month wedding anniversary), I was diagnosed with diabetes.  I saw an endocrinologist at the end of September, and was told that I had Type 2 diabetes that I could most likely control through diet and exercise.  Since then, I've seen a CDE (Certified Diabetes Educator), attended a Diabetes Education Class, and gone to a Diabetes Health Fair.  Through all of these things (and the 10 or so books I've read since my diagnosis), I've learned a lot about the disease and living with it.

I've been able to control my blood glucose relatively well so far with diet and exercise alone, but more recently, I've been dealing with some unexplained high readings that have led me to consider that I may, in fact, be in the "honeymoon" stage of Type 1 or "Type 1 1/2", or Latent Autoimmune Diabetes of Adults (LADA).  With this phenomenon, blood glucose is normally fairly well controlled with diet and exercise and perhaps the use of oral hypoglycemics (drugs that help lower blood glucose) for some time (sometimes months or even years), but eventually, the pancreas completely stops producing insulin and injectible insulin is required to avoid high blood glucose and the resulting complications.

At the Diabetes Education Class and Health Fair I attended this week, several of the health professionals commented on the unusual nature of my diagnosis--I'm not overweight, I'm young and in relatively good health otherwise--in other words, not their typical Type 2 patient.  They seemed unconvinced that that could be the case, and that I should really keep an eye on my BG readings in case I am in that honeymoon stage and Type 1 or 1 1/2 is just around the corner for me.

When I was first diagnosed, I would have given anything to be Type 2 instead of Type 1.  My younger sister was diagnosed with Type 1 Diabetes at 16, so I knew what a struggle it was for her.  My dad, on the other hand, found out he has Type 2 Diabetes a couple of years ago, and he was able to control his through a strict diet, weight loss, and exercise.  I suppose for me it's a control issue...I don't like not having control over situations, so finding out I have diabetes brought out that part of my personality even more.  In my mind, at least with Type 2 you still had some control over what your body did, whereas with Type 1 you're dependent on insulin to stay alive.

That was my thinking originally, but since I've had some time to deal with the shock of my diagnosis, I've come to accept a lot of things that are beyond my control.  If it turns out I have Type 1, so be it.  LADA/Type 1 1/2, ditto.  I would just like to know so I can do something about it.  Yes, I'm very much a Type A perfectionist.  And if I'm one of those two types rather than Type 2, I want to go on insulin sooner rather than later, simply because scientists believe that this may save some of your existing beta cells (the cells that produce insulin in your pancreas) and make the disease easier to control in the long run. 

It may seem like I've accepted my diagnosis fairly well, and in some ways I have.  BUT, I still have days where I'm overwhelmed by the disease and everything that goes along with it.  The constant finger sticks, worrying, watching everything that I put in my mouth, and exercising in a furious effort to keep my BG under control...It's a lot to deal with.  Thinking about the future gets to me too, because I worry about health insurance and starting a family, with all of the extra attention that comes along with being pregnant and having diabetes.  I try not to worry myself too much about complications from the disease, because I know that they're largely preventable if you keep your blood glucose under control...And that's something I fully intend to do, whether that means taking medicines that have unpleasant side effects or injecting myself with insulin several times a day.  And hopefully, my insurance will pay for an insulin pump so I can have better control over my BG.  But that's for another day...=)

Tuesday, November 9, 2010

News

Week 2: ACT
Tuesday, November 9

News – Thanks to American Diabetes Month®, diabetes has been in the headlines this week.  Did you see any diabetes articles that were interesting? Inspiring? Frustrating? While there’s no controlling what the media says, what topics would you cover if you were a reporter?

When you Google "Diabetes" under "News," there are many, many stories that come up that have been posted in the last several days.  Popular topics in the headlines include research and advancements in Diabetes detection and care, symptoms and risk factors for the disease, new drugs, and even smartphone apps designed especially for Diabetes management.

While I'm glad to see that Diabetes is making the news, I wish the awareness wave would reach mainstream media a bit more.  Right now, it seems more of an underground movement than the tidal wave I believe it needs to be in order to truly raise awareness of the disease.  There are so many misconceptions about Diabetes that could easily be cleared up, if only the media would take the time and initiative to focus on the subject.  Even though two of my immediate family members were diagnosed two to four years before I was, I really knew very little about the disease until I personally ended up with it.

I think that American Diabetes Month is a wonderful way to get all of this across, and I'm thankful to the American Diabetes Association for taking the initiative to publicize these important issues.  It will take every one of us with the disease, and those who love us, as well as all of the medical experts and researchers in the field, to make this movement a success.  It doesn't matter if you can't donate money, because many of us (myself included) are in that same boat.  All we need is your voice and your time.  It only takes one person to plant a seed that grows into something much bigger, and all of us are capable of doing something to spread the word.

It's as simple as going to the following link to download a "StopDiabetes" badge or widget to post to Facebook, Myspace, or Twitter (or, if you don't use social networking, your email signature!) for the month of November (and beyond!).  http://stopdiabetes.diabetes.org/site/PageServer?pagename=SD_tools

And, as always, you can go to StopDiabetes.com to find other ways that you can help!